My son Ben loves the county fair. We always start in the animal barns, where he clucks and moos his way down the aisles, the animals patiently letting him pat and talk to them. Then comes the midway, where he has uncanny luck at the games, always coming away with a prize. The rides, however, … Continue reading Ben and the Carnival Fun House
Ben
How Heaven Changes Us
I’ve often pondered what Ben will be like in heaven. I used to think that he would still have Down Syndrome, since it comes knit into his every chromosome. But the longer we deal with not just the delights but also the deficits and struggles that Down Syndrome brings, the more I am convinced that … Continue reading How Heaven Changes Us
Invisible Drums and Air Guitar
I wrote a devotion that was published this morning at Christian Devotions. I hope you’ll go there and check it out! http://christiandevotions.us
Hug Status
My son Ben strides through our church like he owns it, seeking out his favorite people to hug. As we have finally emerged from our year-long quarantine, no one is happier than he to have human contact again. Some people with Down Syndrome dish out hugs like candy at a parade. But not Ben. No, … Continue reading Hug Status
Still Waiting
"Ooh! Weet!" Ben exclaimed when he saw the bouquet our church dropped off the other day. Even though services and activities have resumed, some of us are still quarantined due to health risks. Ben is one of those and, by extension, me - although he can't comprehend why. Ben has been at home, almost totally … Continue reading Still Waiting
A Special Birthday
Last weekend marked the beginning of Ben's 28th year on this earth. Although he has accumulated the years of a man, his heart and understanding are that of a small child. Ben's calendar is simple: Starting on December 26, he starts anticipating his birthday. And on June 28th, he begins to eagerly anticipate Christmas. Every … Continue reading A Special Birthday
The Gifted
Sometimes God's gifts come wrapped in grief. When you find yourself blindsided and reeling, you find that you have been issued an invitation into a raw intimacy with a God you never expected. John 9 tells the story of Jesus healing a blind man. "Who sinned, this man or his parents, that he was born … Continue reading The Gifted
Stacking Legos
In addition to Down Syndrome, my son Ben has Autism. Part of what comes with that is a delight in making patterns. His favorite activity while watching tv is to make a pattern tower with his Legos. He does this by continuously removing the bottom row and putting it on top. This creates a perpetual … Continue reading Stacking Legos
A Kiss
Our son Ben has Down Syndrome, Autism and is nonverbal. He is a 3-year old in a man's body. This past year he insisted that I play the theme for his favorite pro wrestler while he struts out to the bus in the mornings. In order to look as cool as possible, he sports a … Continue reading A Kiss
A Baptism
He stands on the shore of Prairie Lake, swinging his arms and jumping up and down like Michael Phelps preparing to break another world record. It is a rainy, chilly day but he doesn't seem to notice as he rushes down the hill into the cold water to stand with our pastor. His people cheer … Continue reading A Baptism
